national council for support of disability issues

The Supporting Families Community of Practice is a national initiative focused on developing best policies and practices to support families, including family members with a disability, across the lifespan. Our CEO Donna Meltzer chatted with Easterseals about One Vote Now and what this year’s unexpected election process means for people with disabilities. To read the reflection, click here. endstream endobj 242 0 obj <>/Metadata 31 0 R/Pages 30 0 R/StructTreeRoot 33 0 R/Type/Catalog/Lang(en-US)>> endobj 243 0 obj <>/MediaBox[0 0 612 792]/Resources<>/Font<>/ProcSet[/PDF/Text/ImageB/ImageC/ImageI]>>/Type/Page>> endobj 244 0 obj <>stream Most of our presentations and trainings can be adapted for any audience size or length of time. endstream endobj 275 0 obj <>/Size 241/Type/XRef>>stream 0000039837 00000 n NACDD has joined Food Research & Action Center (FRAC) and nearly 1,400 national, state, and local organizations in asking USDA to issue additional child nutrition waivers to support access and program operations through the rest of the school year.

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0000008504 00000 n 0000003953 00000 n That care can be expensive and financially unattractive to insurance companies compared to assisted suicide. The NCD also issued a series of recommendations for departments across the government while reaffirming its stance that assisted suicide should not be legal in the United States. The National Council on Disability (NCD) released a new report highlighting the dangers of legalizing assisted suicide for the disability community.

On Wednesday, the NCD published Assisted Suicide Laws and their Danger to People with Disabilities, the second report in its Bioethics and Disability Series. NACDD joins civil rights organizations from across the country in demanding oversight to ensure language and communication needs are not a barrier to COVID-19 public health knowledge, testing, and treatment.

NACDD has joined The Leadership Conference on Civil and Human Rights in a letter to Congress to provide a low-income broadband benefit as part of the upcoming Phase 4 COVID-19 Package. ���a� f����k@�0��&�V b ��$� ö�8.�)�\`����8��(Cj��� s��5-/|8/�4�0^a83'�����߶�m�CC=��,����@�#�`�$���pH330p�G���@��� � �� To make a direct payment to NACDD, please follow the link below. Civil Rights, “If you’re a person with functional limitations, that’s a real slap in the face.”. <<6D2B3B054C35F441AB50E8DEAA08F26F>]>> Disabilities, In its report, the NDC highlighted a handful of studies that suggest states where assisted suicide is legal also have higher rates of suicide overall. “We the people” lost a larger-than-life champion for equality on the Supreme Court this weekend.

NDC looked at assisted suicide in the state of Oregon, where it has been legal for 20 years. Coalition Letter for the Lifespan Respite Care Reauthorization Act. 0000183157 00000 n “We consider providers and advocacy groups to be subject matter experts,” said Boynton. LifeCourse tools provide a way for individuals with disabilities, families, and professionals in a person’s life (teachers, employers, support staff, etc.)

startxref It is important to not only remember how far we have come but how much more there is to do. So please sign in early to ensure your seat for the live event.

NACDD serves as a key adviser on issues such as the disability treaty, workforce, education and health for the media, policy advisers and lawmakers. 0000003620 00000 n - Encourage and support people with disabilities to reach economic independence through opportunities in education, information and employment. In Olmstead, she explained how the Developmental Disabilities Assistance and Bill of Rights Act provided clear proof of Congress’ intent for people with disabilities to live in the community.

The NDC raised concern that people with disabilities requesting assisted suicide make a financial or moral decision connected to negative disability attitudes rather than “freedom of choice,” which is typically how advocates frame assisted suicide. The NDC, therefore, recommended federal and state governments increase their suicide prevention efforts before legalizing assisted suicide to ensure people with disabilities receive appropriate medical and mental health care. Disability advocate Ben Mattlin wrote about this for Vox in 2017. 241 0 obj <> endobj

Listen to the interview, This National Disability Voter Registration Week, we are so excited to re-launch, Developmental Disabilities Awareness Month, CEO Awards & Self-Advocate Leadership Circle, When I Feel Like No One Speaks My Language as Someone With Dysarthria, National Association of Councils on Developmental Disabilities to Host Virtual Townhall on Medicaid Managed Care in Collaboration with Aetna Better Health, NACDD Statement on the Passing of Justice Ruth Bader Ginsburg, Direct Support Professional Recognition Week 2020 Statement. %%EOF NACDD is the national association for the 56 Councils on Developmental Disabilities (DD Councils) across the United States and its territories. … A better option, for me, is to ensure that people with ongoing conditions are as welcome and valued as anyone else, and indeed that they are assisted in living their lives to the fullest. “We believe all individuals with I/DD have the right to live, work and socialize in their communities,” said Josh Boynton, Head of Complex Care & Strategic Alliances, Aetna Better Heath. The medical community often fails to see the value of disabled lives. The law’s regulations and reauthorization still hold key relevance to employment policy for people with developmental disabilities. NACDD urges Health and Human Services (HHS) to collect and report data on demographic characteristics, de-identified and disaggregated by disability status, to better inform the COVID-19 pandemic response. NACDD signed on to a letter urging CMS to maintain more flexible enrollment policies to allow more people to qualify for health care for the duration of the public health emergency, and longer if needed. Twitter, Causes:

241 36 “The 56 State and Territorial Developmental Disabilities Councils are in a unique position to support individuals with I/DD during this pandemic,” said Donna Meltzer, CEO of NACDD. NACDD supports legislation to reauthorize the Lifespan Respite Care Program at $50 million over five years. - NCSD provides advocacy, education and timely resources to any individual who has a question or concern about rights and responsibilities of persons with disabilities. Spread awareness by posting a tweet or sharing on Facebook! This organization's nonprofit status may have been revoked or it may have merged with another

Letter to CMS on Medicare Enrollment Flexibilities. “I have a disability, and I don’t believe my life is any less valuable because of that.”. 0000006137 00000 n 0000003072 00000 n - Provide information on current legislative issues that affect civil rights, accessibility and the safety of people with disabilities.

The NDC also said “that assisted suicide laws require no evidence of consent when the lethal drugs are administered.” The safeguards designed to protect patients are failing. %PDF-1.5 %���� Shouldn’t that be the first priority? Furthermore, she made it crystal clear that the Americans with Disabilities Act established that unjustified institutional isolation of persons with disabilities is a form of discrimination. Terms, Assisted Suicide Laws and their Danger to People with Disabilities, terminal illness who have six months or less to live, misconception that people with disabilities cannot live ‘normal,’ happy lives, suicide rate increased 42% above the national average, Mainstream suicide prevention initiatives, not inclusive of people with disabilities, protect the lives of people with disabilities.

- Encourage and support people with disabilities to reach economic independence through opportunities in education, information and employment. 0000008019 00000 n Email They were more likely to see needing supportive care is “undignified,” “burdensome” or “an inherent impediment to quality of life.” This can be reinforced by assisted suicide advocates, medical professionals and society at large.

Most significant for the disability rights movement was her majority opinion in the 1999 decision Olmstead v. LC. This paper was made possible through a contract funded by the Administration on Community Living, Office of Intellectual and Developmental Disabilities.

Give Now “We are grateful for Aetna’s collaboration in this learning opportunity and hope that together we can continue making progress in supporting community living for people with I/DD.”. The DD Act, most recently updated in 2000, was originally created in 1963 under President John F. Kennedy as the Mental Retardation Facilities and Community Mental Health Centers Construction Act of 1963. NACD has joined ACLU and other organizations in a letter to Secretary Azar and the DHHS to urge them to protect the voting rights of citizens living in  nursing homes, ICFs, psychiatric hospitals, and group homes during the COVID-19 Pandemic. - Advance the attitudes,consideration, respect and awareness of the general public toward people with all disabilities, by demonstrating their abilities, talents, skills and capability. Read the report at https://t.co/n6jqZMgKzW https://t.co/kWFP4qvMsN. “We pledge to continue our work to fight discrimination, hate and racism that disproportionately affects people of color, and in particular people of color with disabilities.”, Statement from the Consortium for Citizens with Disabilities Board of Directors.

The National Council on Disability (NCD) released a new report highlighting the dangers of legalizing assisted suicide for the disability community. to discuss, brainstorm and have productive conversations about goals, current needs, life transitions and needed supports for the future. - To increase self-esteem and strive for perfection in their own manner within their disability. NACDD on Medicare Enrollment Flexibilities. One cited study, for example, suggested since assisted suicide was legalized in Oregon in 1997, its overall suicide rate increased 42% above the national average by 2012. The report called for better funding and access to long-term services and supports for people with disabilities and more robust research on the impact of assisted suicide. It is fitting that Ruth Bader Ginsburg would author the majority opinion for Olmstead. 0000040096 00000 n She held nothing back while moving our country forward to a more contemporary and expansive definition of equality for all. NACDD serves as a key adviser on issues such as the disability treaty, workforce, education and health for the media, policy advisers and lawmakers.

Other regulations, requirements and restrictions vary by state. Protect and Strengthen Medicaid and CHIP in Next COVID-19 Relief Package, Lifespan Respite Care Reauthorization Act (S. 995).

NACDD would like to thank our sponsors for their support and partnerships.

Disabled Persons Rights,

xref pagespeed.lazyLoadImages.overrideAttributeFunctions(); While assisted suicide laws include regulations, there are not any provisions to evaluate whether patients had access to a standard of care that adequately met their needs before considering assisted suicide. Census Project Letter to House and Senate Subcommittees on FY2021.

Advocating for the rights of people with disability, providing information and learning opportunities, empowering individuals and building communities. - Provide information on current legislative issues that affect civil rights, accessibility and the safety of people with disabilities.

The National Council on Disability makes recommendations to the President and Congress on policies affecting Americans with disabilities.

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